- Word of the day: Ouch.
- I’m done with the cancer, but the cancer isn’t done with me
- Goodbye, my dopey dog.
- So long, Alex King
Polluting the internet since 2004
Apologies up front, this is a long update. I was recovering well from the RPLND. I was back to putting in time at work, albeit from home, but I was starting to feel better and be able to concentrate on something else to take my mind off of the recovery. That ended last Thursday (Nov. […]
November 25, 2015 | Cancer | Comments Off on Word of the day: Ouch.
It has been a week and a half now since my RPLND surgery and I’m recovering mostly fine, save the bloating. The surgery took about 6 hours and nothing out of the ordinary was encountered during the surgery. I had an epidural for the surgery (which they almost pushed me off of the operating table […]
November 15, 2015 | Life | Comments Off on RPLND
I hate this. In two weeks I go in for an Retroperitoneal Lymph Node Dissection (RPLND). Not something I’m looking forward to. The verdict is that the masses I have left are either: scar tissue teratomas still tumors The docs are concerned that the tumors are putting too much pressure on my kidneys and could […]
Last night our dopey little boy passed away. It happened very quickly. I arrived home around 7:30pm to find him immobile. He tried to stand but couldn’t. I took him to the veterinary hospital where by 12:30 he had already deteriorated in to labored breathing. The diagnosis was a lump on his spleen, probably cancerous, […]
We lost a good one yesterday. My friend Alex King passed away after a long fight against cancer. My life is better off today for having joined Alex at Crowd Favorite back in 2008. He was always the perfectionist, sometimes slave driver. He demanded a level of quality that only doing things the right way […]
So, today is a good day. Earlier today I had a PET scan to evaluate the status of my tumors. And the news came back positive. The release of stress that came with this news is unbelievable. Overall there’s no real activity within the tumors. They look dead. There’s one small spot on one of […]
August 28, 2015 | Cancer | Comments Off on The best day of my life this year!
It has been 4 weeks since my last chemo treatment and so it was time for a CT scan to look at my progress. I had the scan last Thursday (Aug. 13) and got the results yesterday. My tumors haven’t shrunk. In fact, they appear larger in some ways, though its hard to tell as […]
August 15, 2015 | Cancer | Comments Off on Progress scans are inconclusive
Today marked my last day of chemo treatment for this shitty ol’ cancer. While I want to celebrate with reckless abandon I’m not over the hump just yet. In 4 weeks I go in for new scans to see if the chemo did its job. If it didn’t there’s surgery in my future. My diagnosis […]
Warning: incoherent babbling ahead! So, today should have been my second day of round 4 of chemo, my final round. But that is not to be. I was hospitalized on Sunday night with some kind of infection that was giving me strep-like symptoms: 101º fever, sore throat, sore ear, and the inability to swallow. After […]
July 7, 2015 | Cancer | Comments Off on Down with a sickness
Treatment is going as well as can be expected. Round three of infusions is now done. The down side is that I’ve contracted a mix of GI Tract and Oral Mucositis, which, just downright sucks. I’m producing a ton of mucus in my digestive tract, which I’m constantly coughing up, and also have sores on […]
June 23, 2015 | Cancer | Comments Off on Round 3 lingers…
Hair loss is in full swing. My head is the worst. It got very patchy and had to be shaved down again. The rest of my body is actually thinning out nicely and not getting patchy. Its kinda weird how that’s going. Today another week of infusions start. I can’t say that I’m looking forward […]
I started to lose hair this week. Its coming out in clumps. Not everywhere, mostly my face and my ass. I finally trimmed back the goatee because it was getting a bit gross losing long hairs all over the place. That and my skin hurts a bit (I don’t know if that’s normal or not). […]
May 20, 2015 | Cancer | Comments Off on On losing hair
Friday hit me like a two ton… heavy thing. Caution, this could get gross. I’m just now getting back to feeling how I felt on Thursday: nauseated, tired and creaky. I finally pooped. Between the stool softeners, the Ex-Lax and the Lactulose I finally got rid of the contents of my bowels. It wasn’t pretty, […]
That’s me putting on a brave face for the camera. Again, Chris’ credit card pays off in spades. I got a different nurse today. He was good. It looks like this hospital is staffed pretty well. I slept through most of the treatment. We came home and I slept some more. The nausea is pretty […]
I got me a private room today. It was pretty nice. I was able to nap for about half of the session. And no personnel issues today so everything moved right along. I heard some folks didn’t get to go home ’till about 8pm last night. Yeesh. I’m really starting to feel the nausea now. […]
The IV today fucking hurt. Getting the port sounds good again 😉 But I think I’ll have to average out the suck across 5 days and see what it looks like. It was a long day today. In for about 6.5 hours since there was a back-up in getting the drugs out in a timely […]
I look around myself in the context of getting cancer and I have a lot of experience to draw from. My father who survived prostate cancer and currently suffers early stages of Parkinson’s disease. My friend Alex who still fights colon cancer. My friend Geoff who had testicular cancer and endured an RPLND (do not […]
| Cancer | Comments Off on Gaining strength through the pain of others.
I peed. A lot. 7 times in 2 hours. I wasn’t able to get in to have a port installed before this so I’m doing direct IV catheters for now. I’ll see if it gets too bad. If it does I’ll get it put in. If I can deal with the catheters I’ll skip the […]
May 4, 2015 | Cancer | Comments Off on Chemo: day 1
When Twilio’s Mr. Ozone uses his Amazon Prime account both I and the internet wins. There’s a third item. Pics of that will come from the Oncology floor tomorrow. This post is part of the thread: The Wailing Wookiee – an ongoing story on this site. View the thread timeline for more context on this […]
| Cancer | Comments Off on More co-worker shenanigans
Last night saw the culmination of just 2 days worth of fund raising bring in just shy of $7,000 for the St. Baldrick’s foundation. Kudos and thanks to Natasha for arranging the whole deal and to St. Baldrick’s for allowing Twilio to put on our very own event. Now that is a good looking group […]
May 1, 2015 | Cancer | Comments Off on Ya know what? I work for a wonderful company.
I have a chemo schedule now. Starting May 4 and ending with my last infusion on July 10. I’m going with “EP” chemo which means that I’ll get both etoposide and cisplatin for 5 days in a row. Each cycle is 3 weeks with 1 week of infusions and then 2 weeks off. This will […]
April 25, 2015 | Cancer | Comments Off on Chemo Schedule & Dicks
I have some very talented co-workers. First up: a get well soon card hand-crafted by Danielle. Laser cut and signed by a lot of good folks at work. The rest of you are dead to me! Just kidding 😉 Next: Twilio had a Painting Night at Wednesday Night Dinner last week. Look there, in the […]
Got in to see an oncologist yesterday. Not the oncologist that will be administering my chemo, but the first Oncologist that I could get in to see and get more information from. Stage IIC, which I’ve also seen referred to as “Bulky Stage II”, means: Cancer found within the testicle or surrounding tissue Cancer has […]
I finally got the pathology back on the removed nugget today. While the mass found within the lil acorn was not cancerous, it was a cyst, there is cancer. Type: seminoma. So, course of action and diagnosis of the stage of the cancer is still to be determined. I do have enlarged lymph nodes and […]
I’m probably premature in posting this but having it out in the open means that I can talk freely about it. My apologies but this is going to be a bit discombobulated. My left testicle was trying to kill me. He has since been banished from his sac. I also have swollen lymph nodes around […]